skinnyminilinny's Journal, 07 Mar 20

This is for some of the people on here that don't understand what some of the people on here live with day to day.
I've been suffering inexplicable pain for years, and a number of changes in me, for no apparent reason. .. until the time comes when they tell you what you have ... There are two feelings, finally you know what you have and the other, how I’m going to get through this... but every day is a battle won !! the lack of courage, wanting to lie down, taking frequent and many medications is like having a small pharmacy on my night stand. Apart from that, the thousands of comments, "why have you gained weight like this?? Why are you so skinny? What's wrong with that hair? You had such pretty hair and now it is all falling? and those spots on your face? You used to be so so beautiful, what happened to you ?? .... all this is true and that's why I share it! Silent and invisible diseases DO exist !!!!!
When you have an invisible illness, it's hard to fight with ignorant people ...
They don't understand it until it happens to them. Life takes many turns!!!
Tired of being told, did you go to the doctor? Did you try this? Did you try that? Yes, I already tried and keep trying everything!
Doctors say this disease is forever. I will not heal. However, I will not give up, but I want to make others realize, A nap will not cure me but it will help me a lot, however, many do not like the sick to sleep so much. I am not lazy, I am taking medication and that makes me very sleepy all day. I struggle with the pain, the mobility problems, the fatigue, the extreme fatigue and apart the criticisms of my environment on a daily basis. The most frustrating part is that people look at me and say, "It can't be so bad; you look good," despite the fact that my body is experiencing excruciating pain everywhere, of course I look good, I try to always look good, it's an "#Invisible" disease, I apologize if I do not go to events that I would love to attend, one day you will understand my daily struggles. This disease affects me physically, mentally and emotionally.
I need your support, NOT YOUR JUDGMENT.
If I fall, I don't need you to get me up, I need you to throw yourself on the ground with me until I have the strength, desire and courage to move on, Because YOU CANT SEE rare autoimmune diseases, but YOU CAN FEEL THEM...
they are there ... Attacking silently, but extra painfully. I'm seeing those who are going to take the time to read this post until the end.
With the post comes the following request:
Please, in honor of someone who is fighting against: Autoimmune disease.
CuCI (Ulcerative Colitis, Crohn’s Disease)
Hypothyroidism and hyperthyroidism.
Polycystic ovary syndrome. Rheumatoid arthritis, Chronic pain, Chronic Dystemia
Endometrosis, Multiple sclerosis.
Aplastic Anemia, Myasthenia gravis.
Pulmonary hypertension, Chronic Fatigue Syndrome, Diabetes, Celiac disease
Anxiety and DEPRESSION (panic attacks)
Fibromyalgia, Raynaud and Sclaroderma.
Lupus, Trigeminal neuralgia, Sjogren's syndrome or any other illness that IS NOT VISIBLE , please don't judge, just be supportive.

View Diet Calendar, 07 March 2020:
1034 kcal Fat: 74.65g | Prot: 57.80g | Carbs: 39.28g.   Breakfast: Ambassador Little Smokies Smoked Sausages, Trader Joe's Shredded Green Cabbage, Cooked Egg White, Coffee-Mate Sugar Free French Vanilla Liquid Coffee Creamer, Organic Valley Heavy Whipping Cream,  Coffee. Lunch: Hellmann's Avocado Oil with A Hint of Lime Mayonnaise Dressing, Turkey Dark Meat,  Lettuce Salad with Assorted Vegetables, Pascha 85% Cacao Bitter-Sweet Dark Chocolate Chips, Ghirardelli Dark Chocolate Chips, Pecans. Dinner: Great Value Bratwurst,  Cabbage Soup. Snacks/Other:  Cashew Nuts . more...

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Comments 
Thank you! 
07 Mar 20 by member: HCB
You are not alone my friend. 
07 Mar 20 by member: Panther59
Good write up. Your friend and you are great for standing up for yourselves 
08 Mar 20 by member: liv001
I understand 😪 
08 Mar 20 by member: Sandee64
" I don't know how I manage this because most of them are brainless. Sorry guys. I guess I am just very patient? Anyone working with people and solving their problems without thinking they are idiots, kudos, you are otherworldly. Oh and, the gym will wait, I am an emotional wreck at this point (you see nothing outside but it's tsunami inside)."...-Velvetee 
08 Mar 20 by member: AboutMyTribe
"It was a hard week. I ditched all the rules because he had a lot of health issues. His gran grandmother passed away. Skipping rules is true torture for me but I'm trying to do my best to make him feel happy. If rules are flexible in my case, it's even easier for you. Just be steady. I haven't worked out this week because "Hi Flu". But I'll be back soon. Be consistent FS." - Velvetee 
08 Mar 20 by member: AboutMyTribe
"Weight after the holiday season, I haven't particularly been a pig more than that, I actually was sick so no workout in the past 2 weeks." - Velvetee 
08 Mar 20 by member: AboutMyTribe
https://nationalautismassociation.org/its-not-rude-its-autism/ ....and without saying no excuses I also exercise forgiveness and understanding 
08 Mar 20 by member: AboutMyTribe
The thing in my opinion that some are missing here, it’s mini’s journal entry. That’s all, she has a right to say anything she wants. You also have a right not to respond. But we should all be respectful. I hope that this doesn’t offend anyone on here. 🙏🙏🙏🙏🙏❤️❤️❤️❤️❤️ 
09 Mar 20 by member: ocean_girl
If you are the judgmental negative responding person on this post, then I would say to you just move on. Nobody is asking for your response. If you are the very compassionate type of person, great. If you are not then just go somewhere else. This was not to make anyone feel guilty. Guilt is a negative emotion, guilt is not something that inspires a person to make changes, Making changes comes from the core of a person when their character is developed. If you knew everything that I have been through in my life as a 68 year old woman and if you were to meet me and see how I handle it, then you would see someone that has a lot of character development, And I can't take credit for that. Only God by his holy spirit changes and develops our character, we are not able to do that for ourselves 
09 Mar 20 by member: skinnyminilinny
Since we cannot change ourselves but only by the power of the Holy Spirit then when I read things from people or when people talk to me that are very judgemental with no compassion and no Grace or couth, I dismiss them because I realize they're just not there yet. I have had every situation that has been posted on this journal entry. I do live in pain everyday of my life. I was just told last week they're going to amputate another toe from my foot. I didn't cry, I didn't scream, or cuss I just said okay. I'm not happy about it and I'm not jumping up and down cheering, but that is just the way it is right now. I wrote all this hoping that people would be more compassionate toward others who are hurting, whether it's physically emotionally or mentally. We should not have to go through things alone. That's why we have this wonderful support group. 
09 Mar 20 by member: skinnyminilinny
Thank you everyone for hitting the heart support button. Thank you for your support. It's nice to know there are people that are here for us when we go through stuff. When I see other people my heart goes out to them. I know sometimes we get overwhelmed. We need a hand. Those are the times Jesus picks us up and Carries us. Footprints in the Sand. Those are also times when we have no one that it's nice to see on here people that honestly care and will pray for us. Prayer does help and Prayer Changes Things. Thank you 
09 Mar 20 by member: skinnyminilinny

     
 

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